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Reviewed Resources:
41.tourette.net
Tourette.net provides an index to Web resources related to Tourette syndrome, with an emphasis on homepages of national Tourette syndrome organizations and the Tourette-related results generated by search engines.
Purpose: Reference.
Audience: Patients.
Reference index:41
Price:Web site is free
URL:http://www.tourette.net/
42.Tourette Syndrome Association of Australia
Australians afflicted with Tourette syndrome can find support on this site, which guides them through the basics of the condition, offers contact details for the Sydney-area group, and links to other similar organizations throughout the country. Site also lists publications of the group and provides instructions on joining.
Purpose: Reference.
Audience: Patients.
Reference index:44
Price:Web site is free
URL:http://www.tourette.org.au/
43. Tourette Syndrome Camp Organization :: Home
All kids can benefit from summer camp, and the Tourette Syndrome Camp Organization makes sure that children who live with Tourette syndrome, obsessive-compulsive disorder, and related conditions have access to first-rate summertime adventures. Details on the camp it runs in Illinois are available here, along with photos and registration information.
Purpose: Reference.
Audience: Patients.
Reference index:11
Price:Web site is free
URL:http://www.tourettecamp.com/
44.Tourette Syndrome Support UK
Britons affected by Tourette syndrome can turn to Tourette Syndrome Support UK for details on the condition, listings of support groups, personal stories, Tourette-related news, fact sheets, an active discussion forum, details on alternative and complementary approaches to the condition, and more. Fine site sports simple design and abundant content.
Purpose: Reference.
Audience: Patients.
Reference index:135
Price:Web site is free
URL:http://www.tourettesyndrome.co.uk/
45.Tourette-Syndrome.com - Home of Tourette Syndrome Onliine
Tourette-Syndrome.com is a fantastic site for those affected by the neurological condition. It features abundant resources organized into a friendly interface, with most contents accessible from the front page. Among the thorough contents are extensive details about the condition (in FAQs, fact sheets, articles, etc.), personal stories, a message board, news, a bookstore, and more.
Purpose: Reference.
Audience: Patients.
Reference index:151
Price:Web site is free
URL:http://www.tourette-syndrome.com/
46.Tourette Spectrum Disorder Association, Inc.
A non-profit organization dedicated to disseminating high-quality information on Tourette syndrome, the Tourette Spectrum Disorder Association, Inc., offers an array of resources on this site: articles, lists of recommended reading, an event calendar, and educational materials. A price list of publications available from the group and details on the pharmacological treatment of the condition are also available.
Purpose: Reference.
Audience: Patients.
Reference index:74
Price:Web site is free
URL:http://www.tourettesyndrome.org/
47.Tourette Syndrome Support and Information for Kids, Parents, Teachers, Friends and Families
Tourette Syndrome Support is a community of families who have been affected by the neurological condition. A message forum and mailing list are complemented by basic details about the condition, details on local support groups, and profiles of famous people with the syndrome. Site is very kid-friendly.
Purpose: Reference.
Audience: Patients.
Reference index:11
Price:Web site is free
URL:http://www.tourettesyndromesupport.com/
48.Oregon Brain Injury Resource Network
Improving access to information and services for people affected by brain injury is the main goal of the Oregon Brain Injury Resource Network. Its website provides background details on the organization and its mission, also offering a thorough library of annotated references to books, articles, and online brain injury resources, a brain injury glossary, and news releases. The "Databases" section contains records of both related literature and support groups, agencies, and service providers throughout the state of Oregon. The "Related Projects" section links to a couple other programs aimed at Oregonians who have sustained brain trauma. Site is clean, and contents are fairly robust.
Purpose: Reference.
Audience: Patients.
Reference index:31
Price:Web site is free
URL:http://www.tr.wou.edu/tbi/
49.Trish MS Research
Trish MS Research Foundation is an Australian non-profit organization that is dedicated to research into a cure for multiple sclerosis. While recognizing the importance of patient support, the Trish Foundation directs its funding toward research projects aimed directly at preventing and restoring the degeneration of myelin that causes the neurological condition. Find basic information about the organization, the projects it has funded, and more, on this pleasantly designed site.
Purpose: Reference.
Audience: Medical Doctors, Medical Students, Patients.
Reference index:14
Price:Web site is free
URL:http://www.trishmsresearch.org.au/
50.Tourette Syndrome Association of New Jersey, INC
Garden State residents affected by Tourette syndrome can turn to the New Jersey chapter of the Tourette Syndrome Association for assistance. Its contents include an online newsletter, a schedule of upcoming events, downloadable fact sheets, and listings of support groups located throughout the state.
Purpose: Reference.
Audience: Patients.
Reference index:100
Price:Web site is free
URL:http://www.tsanj.org/
51.Heart of Texas Chapter of the Tourette Syndrome Association
The "Heart of Texas" chapter of the Tourette Syndrome Association introduces itself on this site. Features include a newsletter, articles, photos, a birthday club, and details on support groups throughout the Lone Star State.
Purpose: Reference.
Audience: Patients.
Reference index:6
Price:Web site is free
URL:http://www.tsatexas.org/
52.Tourette Syndrome Association, Inc.
The Tourette Syndrome Association is a 30 year-old non-profit organization supporting those affected by Tourette syndrome and related neurological conditions. Its comprehensive, well-designed website features details on its 50 U.S. chapters and 300 support groups along with basic details about the condition, news, a guide to resources, and much more.
Purpose: Reference.
Audience: Patients.
Reference index:490
Price:Web site is free
URL:http://www.tsa-usa.org/
53.TSCTalk - Tuberous Sclerosis Talk Home
The TSCTalk Web Site promotes education and awareness of Tuberous Sclerosis through TSCTalk, a mailing list and guides and direct families to the support and resources. Good Internet resources and calendar of events are available.
Purpose: Reference.
Audience: Patients.
Reference index:38
Price:Web site is free
URL:http://www.tsctalk.com
54.Tuberous Sclerosis Association, UK
Learn about the Tuberous Sclerosis Association of the UK. Formed to support those families in Great Britain affected by the neurodegenerative condition, the Association offers a full array of information on its extensive site: press releases, research news, a TSC primer, a collection of publications, and links to resources grouped into separate sections for patients, families, and health professionals.
Purpose: Reference.
Audience: Patients.
Reference index:175
Price:Web site is free
URL:http://www.tuberous-sclerosis.org/
55.UNDERcurrents: photosensitive epilepsy
Brief article discusses the BBC television broadcasting aimed at preventing occurrences of photosensitive epilepsy caused by flashing or repetitive television images.
Purpose: Reference.
Audience: Patients.
Reference index:11
Price:Web site is free
URL:http://www.tv.cbc.ca/undercurrents/epilepsy_special/harding.html
56.Homocystinuria
This page contains a brief introductino to homocystinuria and links to a variety of sites with further information on this inherited, recessive condition.
Purpose: Reference.
Audience: Patients.
Reference index:14
Price:Web site is free
URL:http://www.tylerforlife.com/Disorders/homocystinuria.htm
57.United Brachial Plexus Network
The United Brachial Plexus Network is the nation's leading advocacy and support group for those affected by brachial plexus injuries, also known as Erb's palsy. Details about the condition and the organization, a guide to programs, and very active message boards are all available on the group's pleasantly designed site.
Purpose: Reference.
Audience: Patients.
Reference index:99
Price:Web site is free
URL:http://www.ubpn.org/
58.UCP: UCP of Southwestern Pennsylvania
United Cerebral Palsy of Southwestern Pennsylvania introduces itself on these pages. Find descriptions of services for children, adults, and seniors, along with donation information, job opportunities, and more. Group has recently extended services to several counties in West Virginia.
Purpose: Reference.
Audience: Patients.
Price:Web site is free
URL:http://www.ucp.org/ucp_local.cfm/139
59.UCP
United Cerebral Palsy is the nation's pre-eminent non-profit organization working to support individuals with cerebral palsy and the scientists conducting research on this neuromuscular disorder. This page is a portal; users must enter their location (either a zip code or state) and will then be transported to an index page tailored to their location. Resources at this point are plentiful: news, activity guidelines, caregiving advice, advocacy and public policy information, and much more. Navigation is easy, and site features lots of well-written text and photos. Site is entirely accessible to users who access it in ways other than the traditional web browser.
Purpose: Reference.
Audience: Patients.
Reference index:3548
Price:Web site is free
URL:http://www.ucpa.org/
60.Cerebral Palsy of New Jersey
The fine site of Cerebral Palsy of New Jersey is a central source of support and information for those in the Garden State living with the neurological condition. All of the services offered by the group are outlined here, as are upcoming special events, information on volunteering, and more. The "What's New" section is home to news.
Purpose: Reference.
Audience: Patients.
Reference index:116
Price:Web site is free
URL:http://www.ucpanj.org/
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