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Home > Health > Conditions_and_Diseases > Genetic_Disorders > Prader-Willi_Syndrome
1.The New Jersey Chapter of the Prader-Willi Syndrome Association
Includes news, important dates, fund raising, maps and links.
URL:http://community.nj.com/cc/pwsanj
2.Williams Syndrome and Prader-Willi Syndrome
Diagnostic assessment, selected treatment services and opportunities to participate in research from the Yale University Child Study Center.
URL:http://info.med.yale.edu/chldstdy/wspws
3.Ontario Prader-Willi Syndrome Association
OPWSA provides support and information to all those interested in finding out about this syndrome. A special emphasis on Canadian content.
URL:http://members.attcanada.ca/~opwsa/
4.Prader-Willi Syndrome Hub
Links to information and resources.
URL:http://www.genomelink.org/pws
5.General Practice Notebook - Prader-Willi syndrome
Clinically-oriented information.
URL:http://www.gpnotebook.co.uk/MedwebPage.cfm?ID=-1885732857
6.Gretton Homes
Information about the organization that offers residential care for people with Prader-Willi Syndrome.
URL:http://www.gretton-homes.co.uk/
7.The Prader-Willi Alliance for Research
A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments for Prader-Willi Syndrome.
URL:http://www.p-war.org
8.Prader-Willi Alliance of New York
Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
URL:http://www.prader-willi.org
9.Prader-Willi Syndrome Association of Victoria (Australia)
Includes details about the organization, a diagnosis/infant guide, a general guide, members stories and links.
URL:http://www.pws.asn.au
10.The Prader-Willi Syndrome Association (UK)
Information and resources about this chromosomal disorder.
URL:http://www.pwsa-uk.demon.co.uk/
11.Prader-Willi Syndrome Association (USA)
Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe.
URL:http://www.pwsausa.org/
12.Prader-Willi Syndrome - Suite101
A forum to provide a support base for PWS without having to join one of the national or international associations, and to make people more aware of PWS.
URL:http://www.suite101.com/welcome.cfm/prader_willi_syndrome
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