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Home > Health > Conditions_and_Diseases > Nutrition_and_Metabolism_Disorders > Porphyrias
1.Porphgroup
An e-mail group at Yahoo dealing with the metabolic disease porphyria.
URL:http://groups.yahoo.com/group/porphgroup/
2.Porphyria
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
URL:http://groups.yahoo.com/group/porphyria/
3.Me and AIP
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
URL:http://hometown.aol.com/heyjude957/aip.html
4.Porphyrias
A brief look at the two major types, the symptoms and an example is given.
URL:http://medic.bgu.ac.il/mirrors/netbiochem/hi6.htm
5.EPP
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
URL:http://members.tripod.com/~Alzuko/epp.htm
6.Porphyria: The Unknown Disease
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
URL:http://members.tripod.com/~PorphBook/
7.Acute Intermittent Porphyria Forum
Information and links about Porph. Includes registration form for an email list.
URL:http://members.tripod.com/~theaipforum/
8.Canadian Porphyria Foundation
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
URL:http://www.cpf-inc.ca/
9.Porphyria: The Woman Who Has The Vampire Disease
Review by the FindArticles.com on this book on porphyria written by Lenore B. Weinstein.
URL:http://www.findarticles.com/cf_0/m0FSP/3_21/53578846/p1/article.jhtml
10.HealthCentral - Porphyria
General overview of this rare disease.
URL:http://www.healthcentral.com/mhc/top/001208.cfm
11.Porphyria Hub
Links to overviews, full text articles, diagnosis and treatment and research projects.
URL:http://www.knowdeep.org/porphyria
12.Porphyrias: Diagnosis and Treatment
Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
URL:http://www.medstudents.com.br/metdis/metdis3.htm
13.King George II and Porphyria
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
URL:http://www.mhhe.com/biosci/ap/seeleyap/cardio/reading20.mhtml
14.Diagnosing the Porphyrias
An article by Thomas G. DeLoughery, Associate Professor of Medicine.
URL:http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
15.Prophyria in Charlottesville
An e-mail sent to Professor Huskey from a person working on a rescue squad.
URL:http://www.people.virginia.edu/~rjh9u/porphyriaemail.html
16.Suite 101
Offers links and articles about Porphyria.
URL:http://www.suite101.com/welcome.cfm/porphyria
17.Porphyria
A look at the different types of these disease and some of their characteristics.
URL:http://www.thedoctorsdoctor.com/diseases/porphyria.htm
18.Porphyria Page
A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
URL:http://www.uq.edu.au/porphyria/
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