Specials: American Express no-fee card pays back upto 5% cash.    Vitamin Shoppe up to 75% off retail.

Additional Resources
(not subjected to our MD rating):

REFERENCE:
 Medifocus subject reports.
,

DIABETIC:
 NutriCounter.
, Vitality Medical.
, Wright Stuff diabetes.
,

DIET:
 NutriCounter.
, Rainbow Light Nutrition.
, Weight Watchers.
,

DRUGS:
 DrugStore.
,

EQUIPMENT:
 Vitality Medical for patients.
, Mobility:
 FamilyMobility electric wheelchairs, scooters, lift chairs, ramps, lifts (Medicaire, $75 coupon).
, Professional:
 Vitality Medical.
,

EXERCISE:
 Premier Fitness.
, Equipment:
 International Jock.
, Post-Natal:
 BodyTrends.
,

GADGETRY FOR HEALTH:
 Gold Violin Gadgets.
, WrightStuff arthritis.
,

HERBS AND VITAMINS:
 General:
 GNC.
, Virility Health.
, Vitamin Shoppe.
, Web Vitamins.
,

HOTLINES:
 Keen pregnancy talk.
,

INSURANCE:
 DentalPlans.
, Preferred HealthPlus.
,

LEGALITIES:
 TestClear.
,

MIND:
 Serenity Health relaxation.
,

POTENCY:
 Sexual Wellbeing Products.
,

SKINCARE:
 Avon.
, Cosmetic Mall naturals.
, Derma Doctor.
, E hairRemoval.
,

SMOKING:
 LifeSign Quit Smoking.
,

STORES:
 General:
 DrugStore.
, Gaiam Naturals.
, Specialty:
 Abundant Earth Organic.
,

WELLNESS:
 Rubs.org massage.
, SpaWish.
,

Home > Health > Conditions_and_Diseases > Rare_Disorders

See also:
Health: Conditions_and_Diseases: Rare_Disorders: Pemphigus
Health: Conditions_and_Diseases: Rare_Disorders: Progeria
Health: Conditions_and_Diseases: Rare_Disorders: Ollier_Disease
Health: Conditions_and_Diseases: Rare_Disorders: VATER_Syndrome
Health: Conditions_and_Diseases: Rare_Disorders: Phenylketonuria
Health: Conditions_and_Diseases: Rare_Disorders: Aicardi_Syndrome
Health: Conditions_and_Diseases: Rare_Disorders: Jacobsen_Syndrome
Health: Conditions_and_Diseases: Rare_Disorders: Erythromelalgia
Health: Conditions_and_Diseases: Rare_Disorders: Alstrom_Syndrome
Health: Conditions_and_Diseases: Rare_Disorders: Melorheostosis
Health: Conditions_and_Diseases: Rare_Disorders: Degos
Health: Conditions_and_Diseases: Rare_Disorders: Pierre_Robin_Syndrome
Health: Conditions_and_Diseases: Rare_Disorders: Cerebrocostomandibular_Syndrome
Health: Conditions_and_Diseases: Rare_Disorders: Agnosia
Health: Conditions_and_Diseases: Rare_Disorders: Cleidocranial_Dysplasia
Health: Conditions_and_Diseases: Rare_Disorders: Barth_Syndrome
Health: Conditions_and_Diseases: Rare_Disorders: Rubinstein-Taybi_Syndrome
Health: Conditions_and_Diseases: Rare_Disorders: Tyrosinemia
Health: Conditions_and_Diseases: Rare_Disorders: Moyamoya
Health: Conditions_and_Diseases: Rare_Disorders: Wegener's_Granulomatosis
Health: Conditions_and_Diseases: Rare_Disorders: Cystinosis
Health: Conditions_and_Diseases: Rare_Disorders: Pemphigoid
1.Kindler Syndrome
line
An article and case study of this rare disease. Includes links.
URL:http://digilander.iol.it/camdic/KINDLER.html

2.Fibrous Dysplasia Support Online
line
For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
URL:http://members.cox.net/fdsupport/index.html

3.Nomid /Cinca
line
Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups.
URL:http://pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm

4.Office of Rare Diseases
line
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
URL:http://rarediseases.info.nih.gov/ord/

5.Tetrahydrobiopterin Home Page
line
Information on structure, biosynthesis and pathophysiology of BH4 - database of BH4 deficiencies - database of mutations - screening for BH4 deficiency. These are just a few of the topics discussed.
URL:http://www.bh4.org

6.Contact a Family
line
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
URL:http://www.cafamily.org.uk

7.International Rare Disease Support Network
line
A community providing more than a 1000 different links to support groups for the people of all nations.
URL:http://www.raredisorders.com

8.Proximal Femaral Focal Deficiency
line
This website about Michael was done so that other PFFD families can see his photos and doctors can view his xrays.
URL:http://www.tum.pwp.blueyonder.co.uk/




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