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Additional Resources (not subjected to our MD rating): |
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Home > Health > Conditions_and_Diseases > Rare_Disorders > Barth_Syndrome
1.Barth Syndrome Family Network
Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources.
URL:http://shelbowen.freeyellow.com/
2.Barth Syndrome Foundation
Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
URL:http://www.barthsyndrome.org
3.Clinical Mass Spectrometry Laboratory
An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management.
URL:http://www.med.jhu.edu/CMSL/Barth_Summary.html
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