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Home > Health > Conditions_and_Diseases > Rare_Disorders > Progeria

1.Progeria Research Foundation, Inc.

Medical research, education, support, and fundraising for this "pre-mature aging" disease.
URL:http://progeriaresearch.org

2.Lori and Ashley Hegi

Pictures, information, and updates about Ashley, her experiences with Progeria, and her mom, Lori.
URL:http://www.geocities.com/lori_and_ashley/

3.Hutchinson-Gilford Progeria Syndrome (HGPS) Resource Page

Provides an overview of the disease as well as links to resources.
URL:http://www.laze.net/progeria/index.html

4.NCBI: Genes and Diseases

Provides a short descriptions of the inherited disorder, Werner syndrome.
URL:http://www.ncbi.nlm.nih.gov/disease/Werner.html

5.University of Washington: Werner Syndrome

Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
URL:http://www.pathology.washington.edu/werner/

6.Progeria Family Circle

Overview of the rare disorder, symptoms, and experiences of children with Progeria and their families.
URL:http://www.privat.schlund.de/p/progeria/progeria_uk.html

7.Progeria Discussion Area

Forum for the discussion and dissemination of information relating to Hutchinson-Gilford Progeria Syndrome, created in the hope that people with family and friends affected could keep in touch, and be aware of the latest information.
URL:http://www.progeria.org/

8.NORD - Werner Syndrome

Offers alternative names, a general discussion and further resources.
URL:http://www.stepstn.com/cgi-win/nord.exe?proc=GetDocument&rectype=0&recnum=135

9.Online Mendelian Inheritance in Man - Progeria

Progeria medical database resource for textual information, pictures, and reference information.
URL:http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176670

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